Comment Wars – Border Skirmish Edition

December 21, 2012


Casually objecting to the tiresome, if ever-so-slightly amusing title at FireDogLake, “Less an ideology than something that should be in the DSM-V” (a trivial posting, BTW), I posted the following comment:

“I’m guessing you’ve never been labelled with a ‘mental illness.’ I think it’s about time we lay that particular genre of all-purpose retorts to rest — one instance at a time, one person at a time, day by day, from now on. I’m ready to start doing my part. How ’bout you?”

An unremarkable comment on my part. And unremarkable lameness ensued:

Person1: “I have been labeled with a mental illness, straight out of the DSM-IV and I have no problem with the characterization.”


Person2: “So have I. Note that neither [Person1] nor I put the words mental illness in quotes–that’s because we know from hard experience that it’s bloody well real.”

Presumption building…

Person3: “Represent! I as well, (multiple ones in fact). Mr./Ms. dkmnow is suffering from Butthurt by proxy, very similar to Münchausen’s by proxy except that Münchausen’s involves actually seeing a health professional.”

Done. Full Blown Misrepresentation. In Three Easy Steps.


Person3’s all-too-familiar sneer was posted while I was busy writing my reply to Person2, as follows:

Decades ago, homosexuality was officially recognized as a mental illness. If it was a real illness then, why isn’t it an illness today? Likewise, Gender Identity Disorder has finally been removed from the upcoming DSM-5. Now, this will create significant funding problems for a large number of very vulnerable people, but at the same time, it will help to reduce the stigma that society has long heaped upon transgendered persons. But the question remains: Is GID a Real Mental Illness, or isn’t it? And this is hardly an uncommon question to ask about DSM-defined conditions. Virtually anyone who has studied the process of how DSM diagnoses are derived can tell you that such conundrums abound in connection with virtually every DSM label.

But this is peripheral to my point. I’ll put it another way. Is it ethical to condone and participate in a popular cultural behavior that entails using people who have been labeled with “mental illnesses” — be they real, imagined, or falsely assigned — by equating them with any or all of the biggest a$$holes in our vaunted “normal” society? Is this not an ill-considered and casually dismissive way of exacerbating the stigma already heaped upon those who suffer from mental illnesses?

Not clear enough? Okay. How about when several million of society’s least criminal, most law-abiding, and most uniquely vulnerable citizens suddenly find they are being categorically equated with mass-murderers by tens of millions of others, and, in addition to their pre-existing disadvantages, are now being routinely targeted with a terrifying escalation of slander/libel, discrimination, harassment, assault, and worse?

Or is the casual promotion of stigma and the sustaining of popular biases against any & all labelled “mentally ill” not really a Real™ problem? Perhaps you’ve gotten all comfy with the notion that it’s not your problem. I would hope that the gratuitously predatory media-driven fallout from the Sandy Hook incident might have shown you otherwise by now. “First they came for the communists…”

While you’re busy not standing out, one group is standing up. But after they’ve rounded up all the autistics, who will be left to stand up for you?

Do I have to show you my scars now?

. . .

Again, I yawn. What follows will not likely be of any consequence. Few will see any of it. I may check back in a day or so, but I doubt I’ll bother with any further replies. Still, it was pretty disappointing. Emblematic of our culture, and even of most who identify as mentally ill, apparently. We do as we’re told, math is hard, and Barbie™ can go on being proud.


To Autism Speaks, on the Next Wave of Sandy Hook Victims

December 18, 2012

[I deliver the following without a trace of irony. There is no humor here. Only pain … and one more crumb of hope.]

Dear Autism Speaks,

In the wake of the Sandy Hook tragedy, my sorrow for you is immeasurable. You are now seeing your very own children demonized in the popular media, and thus, in the minds of an entire generation of Americans. You are beginning to see how this will make your children’s lives even harder. You are seeing how the stigma and social burdens already heaped upon them are now doubled and redoubled with each new slur. And you are seeing how this newly amplified social prejudice and discrimination against your children will not go away. It’s heartbreaking.

Doubly so for us.

We, the adult autistic community, have been trying to warn you about this for years. We have endlessly demanded, pleaded, even begged you to drop your bombastic rhetoric about how “monstrous” autism is, how it “destroys families,” how it’s “a burden on society.” When the public is fed this sort supercharged emotional imagery, they do not connect it with some abstraction called “autism.” They connect it with real people. They connect it with US. All of us, including your children. When the public looks at us, they see our faces and feel the “monstrous” imagery you have instilled in them. In this way, WE become the Monster. And when they see us in this way, they treat us badly. They treat your children badly, as you are now seeing, and as you will continue to see for years and decades to come.

This is how dehumanization works. This is the process called “scapegoating.” This is how paranoid societies wipe out whole populations of innocents without feeling a trace of guilt. This, in all its glory, is the the face of injustice.

And this is what we tried to warn you about. This is what we asked you to help us stop. But you didn’t see any point in listening to the people you claimed to speak for.

For today, at least, it is not you who are doing the demonizing. Indeed, several of your officers have been quite vocal in trying to fight back the “mass-murderers” hysteria by which we have now been permanently branded. But your voices are now swept aside by the media’s torrent, just as our voices have always been swept aside by yours. And it is now too late to stop the tsunami of prejudice that today threatens to drown your very own children. Oh, Autism Speaks, if only you had listened.

But it’s not too late to start.

We are still here. We will always be here. Waiting. It’s time for you to take up the burden in a new way, by learning from us how to be a little bit ‘autistic’ yourselves: by saying what you mean, and by meaning what you say.

And, above all, it’s time for you to listen.



One Unheard Autistic Adult

. . .

For more background and a roundup of responses to the media’s assault on the autism community, please visit:
I Speak of Dreams: Gun Violence and the search for a scapegoat, autism edition

Meta: getting real

July 27, 2012

Just a quick update.  My surge of motivation last year wasn’t enough to overcome the functional challenges I face in blogging, and frankly, that didn’t come as much of a surprise.  But that’s fine.  For now, I’ve mostly rolled things back to their pre-2011 state.  With few exceptions, I’ve dumped the prematurely added categories and posts that just didn’t belong.  Feels better this way.

I will be doing my best over the next week or so to come up with some kind of response to the Scarborough Atrocity.  The NYU/CSC “Ransom Notes” campaign and the Autism Speaks “I Am Autism” video were awful, but in terms of widespread long-term harm to the autistic community, this really does appear to be much, MUCH worse.  Just flinging tweets at the world won’t do, not this time.  So expect something on the topic to appear here before long.

Otherwise, visitors should still expect my updates to be infrequent & sporadic, as they have always been.

Best wishes always,


Some thoughts on helping, and “helping”

July 28, 2011

[Prompted by a recent Tumblr reblog by duyukdv (Urocyon here on WP), I’m dragging this old one back up to the top of the timeline. It originally appeared here on February 29, 2008.]


[For a bit more on this delightful topic, see Andrea’s “So-Not-Helpful Fixers and their Malcommendations.” Cheers.]

Everyone wants to appear helpful. Trouble is, rarely are any of us willing to do the extremely hard work of figuring out just exactly what help, if any, is actually needed. And when we fail to prevent our motives from being ruled by the social compulsion to appear helpful [and/or, the drive to promote our own careers … hint, hint], our rationality is invariably compromised by conflicting interests, and we are almost absolutely guaranteed to screw the pooch. In such cases, unless we just happen to get lucky enough to guess right — which is a bit like playing the lottery with someone else’s money — then we are very likely to end up harming the person we’re so hell-bent on “helping,” and perhaps (OMG!) ourselves as well.

Or, to repeat what is rapidly becoming an old saw in my limited repertoire: “Ninety-nine per cent of the art of helping lies in knowing what NOT to do.

But Ego is a Jealous God [as are fame and wealth], and guarding against the corrupting influence of social compulsion and ego-defense is perhaps the hardest work of all. It requires a great deal of time, self-awareness, careful critical thinking and skepticism, and rarest of all, an extraordinary commitment to self-honesty.

But, failing all that, here’s one rule-of-thumb whereby we can help ourselves to, at the very least, do no harm:

If we feel compelled to keep telling people over and over that we’re “only trying to help” … then WE’RE NOT.

This is not some cynical admonition to never try to be helpful — far from it. Rather, we should take these hard realities as a recurring opportunity to carefully examine our own commitment to actually being helpful.

So … there it is.

Disability Rights Community vs. Autism Speaks

October 10, 2009

[sent to family and friends]

The letter below is the latest step in a national and international protest against the U.S. organization known as Autism Speaks. Countless attempts have been made to impress upon the organization that its public rhetoric, policies and practices are profoundly harmful to ALL Autistic citizens, and that its leadership MUST accept guidance from Autistic stakeholders and the broader disability rights communities if they wish to retain their status as a prominent charitable organization.
Read the rest of this entry »

Deficit-model feeds anti-Autistic prejudice

July 3, 2009

[Originally posted on June 24, 2009, as a comment on Helene Guldberg’s Psychology Today article, “How the quack industry harms autistic children,” an interview with Michael Fitzpatrick, discussing his book, Defeating Autism: A Damaging Delusion.]

Not a bad article – especially in contrast to the kind of “information” that currently dominates popular opinion on the topic of autism.

Unfortunately, it does not go nearly far enough into the question of harm, because it proceeds solely from the narrow “deficit model” of autism. Lacking what is sometimes referred to in academia as “the sociological perspective,” such discussions cannot approach the issues that have, by far, the most devastating impact on quality of life, not only for children, but for all Autistics.
Read the rest of this entry »

Learning By Example

May 25, 2009

Yes, mainstream “values” set the example. And, yes, our youth internalize those “values” and follow that example — albeit, sometimes too explicitly to suit our comfort and convenience:

“The video was made by girls at a Spanaway, Washington school who apparently had a falling out with a classmate, Piper. The clip carries illustrations of Piper being shot, made to commit suicide, thrown off a cliff and poisoned…”

Of course, we note — with some satisfaction, no doubt — that these girls were “disciplined.” That’s the modern-day euphemism for extrinsic punishment. We no longer remember what that revered word “discipline” once expressed. We just use it to sanctify that very social mechanism which makes such offenses so common first place: society’s unquestioning devotion to, and all-consuming obsession with, extrinsic behavioral conditioning.

[Note to Autism Hub members: that last devotion/obsession is, in my opinion, the very root of what ultimately makes ABA and its offshoots unethical.]

More on that later…

I resisted. But it was futile.

May 24, 2009

Yes, it was inevitable. And now it’s done.

I am now officially “Twitterpated.”

The inexplicably enthusiastic should note, however, that I am NOT mobile, and email is still the most reliable way to contact me. Don’t Blackberry me before I’m dead.

That is all.

As you were.

New GAO Report: Schools Abuse Disabled Kids

May 19, 2009

[“GAO” = Government Accountability Office, United States of America]

From a new entry on the Mother Jones blog:

GAO: Schools Abuse Disabled Kids

— By Jen Phillips | Tue May 19, 2009 11:07 AM PST

A new GAO report shows that the Judge Rotenberg Center in Massachusetts isn’t the only place where developmentally disabled and emotionally troubled kids have been physically punished and restrained. The [new GAO] report, which came out today, details cases at public and private schools across the nation where children as young as five have been sat on, lashed to chairs, isolated for hours, starved, and humiliated as punishment for actions like “slouching and hand waving.” In dozens of cases, these punitive measures resulted in students’ deaths…

Read the rest of this entry »

Katie Couric’s Terrorphobia Inc.

October 23, 2008

To be fair, most of the corporate media float these sensationalist red herrings almost to the exclusion of all else. Nevertheless…

Tonight on CBS News, Couric plugged an upcoming segment promising to examine the presidential candidates’ positions on what she called “one of the most serious threats to this country, Islamic extremism.”

My immediate reaction:

Read the rest of this entry »

APA Complicity in Abuse and Torture

September 18, 2008

A message from the Psychologists For Social Responsibility discussion group brings good news, and bad. A majority of the APA membership have made a significant step toward redeeming the organization, at least on the issue of participating in — and thus, tacitly condoning — inhumane treatment of detainees.

Many such organizations of legal and helping professionals — including the American Bar Association, the American Medical Association and the American Psychiatric Association — wasted little time in condemning the Bush Regime’s unlawful and inhumane treatment of detainees, and in barring their membership from any participation in such abuses. The APA leadership, however, were apparently unwilling to give up what promised to be a highly lucrative association with entrenched political interests. Shocker.

But this week’s news brings some real hope for change. Stephen Soldz, APA activist and founder of the Coalition for an Ethical Psychology, has posted a press release on the Psychoanalysts for Peace and Justice blog:

Read the rest of this entry »

Yearbook Too Good For Short Bus Rabble?

June 18, 2008

Or is it just another case of the same old pedestrian status quo negligence, born of socially constructed ignorance, that always governs the behavior of the privileged toward atypical and non-privileged members of society?

Does it matter which? Intent may signify malice, but if the cause is mere ignorance and carelessness, what’s the difference? The effect is the same.

For the particulars in this case, here’s the scoop:

School Leaves Autistic Kids Out Of Yearbook
Parents Say Act Done Intentionally, School Disagrees

June 18, 2008

ROSEVILLE, Calif. — The parents of twin autistic boys left out of a yearbook are accusing the school of discrimination. Read the rest of this entry »

For All Our Mothers, Yours and Mine, Then, Now and Forever

May 10, 2008

Arise, then, women of this day! Arise all women who have hearts, whether our baptism be that of water or of fears!

Read the rest of this entry »

In Search of Awareness

April 15, 2008

or, The Ghost of Easters Past …

For those in search of Autism Awareness, I suggest you start by turning OFF your television.


As a child, my experience of Easter was mixed. My early memories include the fun, the frivolous, and the unfortunate, the curious and the catastrophic, the “renewal” of spring and the crushing blows of “pragmatic” but uncomprehending nature, human and otherwise.

My lifelong agnosticism is not born of illiteracy regarding religious matters, as I was practically raised in the Presbyterian Church. I was as aware as any child of the significance of Easter in the Christian tradition. But like any child, my own perceptions were confined to the flow of my own experiences, whether pleasant or painful. My awareness of the commercialization, and the inevitable dilution of meaning that comes with it, came much later. And later still, other associations crept in…

Read the rest of this entry »

Because someone had to do it

April 7, 2008

i r katleen

So there.


For those few who (owing to their living under a rock, I guess) are as yet unaware:

Q: Who is “katleen”?

A: “I Am Kathleen.”

Q: Oh, you mean “Kathleen.” Don’ look so “leejun” to me. Whyzit such a big deal?

A: Because the “subpoena” [PDF] is a retaliatory abuse of power, and a compound civil rights violation, contrived with intent to intimidate a very large group of citizens … and because “WE ARE ALL KATHLEEN, NOW!

Shoemaker’s Witch-Hunt: An Open Letter

April 4, 2008

[Lists of dozens more blog entries in support of Kathleen Seidel can be found at Holford Watch, and I Speak of Dreams, and The Voyage, and Natural Variation, and ….]

[WARNING: extreme satire ahead!]

Read the rest of this entry »

“Autism Awareness”

April 1, 2008

Or, “Wait — you’re saying that YOUR prejudice is a ‘symptom’ of MY autism?”

So, the dreaded “Autism Awareness Month” has arrived, and thus, the seasonal deluge of parental angst and professional avarice shall soon be upon us.

For my own part, I will indeed be attempting to participate in the “Blogging for Autism Awareness” project. Here, have a button: [deleted by host]

As words are often in short supply for me (well, coherent ones, at least), I expect I’ll mostly just be linking back to various classics in autistic self-advocacy and disability rights genres. But for this stab, I’m going to indulge in a bit of self-quotation, plus links…

Read the rest of this entry »

Who will teach journalists how science works?

March 10, 2008

Scientific Blogging‘s Michael White has a very interesting new piece (link below) on one aspect of how science is often (mis)represented in popular media. I don’t feel inclined to argue pro or con on any of the particulars of the case he examines, although I do have a great deal to say on the broader issue of how our society presently handles matters pertaining to scientific progress. But I’m saving that rant for later. As for the answer to my opening question, I’ll offer up this little “hint”: it won’t be our increasingly corporate-dominated education systems. Not the way things are going, at least.

However, I think Autism Hub readers, especially, will find many strikingly familiar themes in Bad Science Journalism and the Myth of the Oppressed Underdog — especially in light of [*cough*] recent events in The Great Autism Debate.

Share and Enjoy.

Evidence of Barm

March 8, 2008

(or, Data?! We don’t need no stinkin’ data!)

So, the Gub’ment conceded that one girl’s quasi-autistic characteristics might have been aggravated by some jab or other … and that’s conclusive proof that autism is caused by vaccines. Gawd, I love America! Big Pharma must be peeing their socks in delight over this spectacular distraction from their real atrocities. And what better way to help marginalize dissenters and their pathological obsession with “fact-checking”?

Well, who knows where scientists and autistics get their crazy ideas, anyway, and who cares? For normal people, sixty-two thousand four hundred repetitions make one truth, and researching the netertoobs goes something like this:

Read the rest of this entry »

Update On Posts Blocked by NYU/CSC “Town Hall”

March 5, 2008

As was made clear by events on and following Tuesday, Feb. 26, NYU’s Child Study Center failed to live up to its promise of providing an open forum for discussion of children’s mental health (though they would have us believe otherwise). However, it would appear that Dr. Harold S. Koplewicz is gradually making good on his subsequent promise to reply via private e-mail to those posts which were blocked.

As evidence, I have just received a reply to one of my posts, which I will be deconstructing shortly for your enjoyment the purpose of furthering open dialog.

Moreover, the e-mail reply DID include, as expected, a copy of my original post, and presumably, this will be the case with all such replies. What that means is that those of you who were blocked will have a second chance to re-insert your voice into the sphere of public debate where it belongs.. If you wish, when you receive your reply, I will be happy to add the text of your original post to the current list of those that were gagged blocked by Koplewicz and crew. (yes, I know — I still need to polish up the list’s introductory text — bear with me)

I’ll add your post(s) to the list ONLY with your express permission, and if you prefer that your entry be listed anonymously, please let me know. If you would like your name/handle to link to a blog, website, or e-mail address, please provide those details as well. PLEASE SEND POSTS, permissions, and other details to me at my primary e-mail addressand please include “NYU/CSC” in the subject line so I’ll know it’s not spam.

Thank you,